ALOPECIA UK PROMOTING HAIR LOSS SURVEY TO ENSURE REAL PEOPLE ARE AT THE HEART OF RESEARCH

Alopecia UK has recently helped to launch a Hair Loss Priority Setting Partnership (PSP) survey. They are looking for real people with real experiences to have their say; Joanna Rowsell, Alopecia UK ambassador is also supporting the initiative.

The survey has been set up as an opportunity for those with hair loss to be at the centre of hair loss research planning. The Hair Loss PSP is an initiative steered by leading UK clinicians & patients, Alopecia UK, the British Hair and Nail Society and The James Lind Alliance. They are encouraging everyone with questions about hair loss, whether patient or clinician, to complete the survey and make the most of this rare opportunity.

Alopecia UK is helping to encourage people to fill out the survey to ensure those with hair loss will be at the heart of research. The survey can be found through the Alopecia UK website until 31st October, when entries will then be collected and analysed.

Recently announced Alopecia UK ambassador, Joanna Rowsell has shown her support for the survey by filling it in herself, as she said “I have completed the PSP survey as this is a unique opportunity for those with hair loss. I hope many others with alopecia will complete the survey and make their voice heard and their opinion count.” The gold medal winning cyclist was diagnosed with alopecia at the age of 10 when she lost all of her hair.

Jen Chambers, Alopecia UK Charity Manager said “I am so pleased that we could help to launch this survey.  There is currently very little hair loss research happening in the UK and this is a huge opportunity for all those impacted by hair loss to help change that.  Completing the survey will help to establish the priorities for hair loss and thus shape the direction of future hair loss research in the UK. It is a great way for people to ask all those questions that have played on their mind and gone unanswered for so long.”

She continues: “Questions can be about anything related to hair loss whether it be relating to prevention, diagnosis or treatment, whatever treatment that may be. I am looking forward to seeing the results and making sure that we can raise awareness for alopecia in the research arena as much as possible.”

The Hair Loss PSP Survey can be found at: www.surveymonkey.com/s/hairlosspsp and will be displayed until Friday 31st October 2014.